Caregivers Urge Action as Obama Administration Drafts National Alzheimer’s Plan

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“This is a unique opportunity, maybe an opportunity of a lifetime in a sense, to really have an impact on this disease,” says Dr. Ronald Petersen of the Mayo Clinic, who chairs a committee that later this month begins advising the government on what that plan should include.

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As her mother’s Alzheimer’s worsened over eight long years, so did Doreen Alfaro’s bills: The walker, then the wheelchair, then the hospital bed, then the diapers — and the caregivers hired for more and more hours a day so Alfaro could go to work and her elderly father could get some rest.

Alfaro and her husband sold their California house to raise money for her mother’s final at-home care. Six years later, the 58-year-old Alfaro wonders if she eventually develops Alzheimer’s, too, “what happens to my care? Where will I go?”

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Original content Bob DeMarco, the Alzheimer's Reading Room

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